If she goes into hospital then the Neurologist will see her, as will the MS Nurse, as will the Physiotherapist as will an Occupational Therapist. If she does not, appts far into the future will be made.
J doesn’t want to go because in the end there is no point. Cannabis would apparently help the pain in her legs but nothing that could be prescribed. The Consultant will just makes notes for his own benefit and MS Nurses seem have a good line in “there there”. The OT we do have hasn’t even asked about using a pen or cutlery which is an actual issue and the hospital OT would defer to the “one who knows you best”. And going in means no TV, no familiar home, no internet, a different bed, people poking with needles, being used as a specimen by some. All not good, all experienced before.
But if you don’t go to hospital you cannot be ill. Screwed either way really. Which is really really annoying.
She’s fed up of the relapse which the steroids haven’t shifted at all, she’s fed up of seeing me doing all the house stuff (which I don’t mind) and she’s fed up of the MS. Like you would be.
We all live in a bubble of some sort. We like to think we have rich, varied and exciting lives but in the end it’s all just more of the same each day / week / month. “Same shit, different day”. But sometimes events happen that make you step back and see your life for what it is, who you know, where you go, why you do things. You see your life more dispassionately for short time - your bubble burst. And despite thoughts and ideas about change and improvement things drop back into the regular pattern soon enough. A relapse bursts the bubble here.
Nothing can be done of course but for me at least I want to get the bubble back because thinking about what could / should have been or be isn’t such a great path to go down. J feels the same but she takes the blame even though there is no blame. There are things we haven’t talked about which will happen in the future. We haven’t talked about them because we adapt, we make our bubble suit us - no different to other people. But when it bursts those issues come really close to being talked about and yet that is the time you really shouldn’t be talking about future negatives. And when it goes back to what passes as normal we will ignore that monster in the corner.
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